My boyfriends Run for Fibromyalgia

On Sunday 9th April, my boyfriend will be participating in a run/walk from Shoeburyness to Leigh-on-sea to raise money for Fibromyalgia awareness. Both his mum and I suffer with the condition and have had to leave full time work because of it. Fibromyalgia has become the pinnacle of our lives leaving little room for much…

Governmental Hooligans

After going to the cinema to watch I, Daniel Blake by Ken Loach, I felt the need to write a little bit about the film and how I can relate to the story.

We travel not to escape life, but for life not to escape us

This blog post is a little different from the ones I usually write but, I wanted to talk about something positive which is unfortunately quite difficult when talking about chronic illness. Sometimes all you need is some fresh air, a change of scenery and some good laughs to make you feel better, even if only…

Fibromyalgia, Its like having a hangover only without the party

Over the last months I have found it difficult to sit and think of something to write. I have found myself on countless occasions sitting and staring blankly at the laptop, having forgot the idea that had popped into my head only moments earlier. During the month of August I have found it hard to…

As mad as the hatter, as lost as Alice ⏳

I have spent a lot of time recently feeling a bit lost… lost in my head… lost in my body… lost in life. Lost yet the clock is always ticking. There is so much going on around me that is just out of reach. My motivation dwindles from day to day and I use all…

Summer heat? What is this torture?

In the UK we are currently in the middle of a surprisingly hot summer. I know i just said UK and hot in the same sentence. Usually by this time of the year we barely reach short wearing weather and we always need a umbrella handy for when the heavens open which we have all…

"I lost myself somewhere in the darkness"

“Life is funny, isn’t it? Just when you think you’ve got it all figured out, just when you finally begi“Life is funny, isn’t it? Just when you think you’ve got it all figured out, just when you finally begin to plan something, get excited about it and feel like you know what direction you’re heading…

I Believe You!

The worst thing you can do to someone with an invisible illness is make them feel like they need to prove how sick they are. Nobody really realises that some people have to use a tremendous amount of energy merely to be normal. I am what a person with an invisible illness looks like. I do not…

Life is tough my darling but so are you!

Almost a year ago now I was working 40+ hours a week running here there and everywhere to get things done and spent my days off resting for the busy days ahead. Now my life consists of numerous doctors appointments, waiting for referrals, filling in benefit forms and remembering to take tablets. I must admit…

Laughter is, and will always be, the best form of therapy

Sometimes the hardest part about having a chronic illness is not knowing what is next. Will I ever feel better? Will the pain ever become bearable? Will I be able to work again? Have all of my plans for the future become dreams rather than achievable goals? It is hard to have a vision for…

Tough situations build strong people

Maintaining a good, healthy relationship when an invisible illness becomes the unwanted third wheel. Relationships intimate or otherwise are usually a private things that you keep quite close to your heart, locked away in its own heart shaped box. However, when it comes to having a chronic illness or knowing someone that does, you are…